Wyślij tekst przez e-mail 
Ukryj
Pokaż wszystkie
Dobrostan rodziców dzieci ze spektrum autyzmu. Rola pozytywnych i negatywnych emocji oraz stylów radzenia sobie ze stresem
Streszczenie w języku polskim
Wprowadzenie: Organizacja Narodów Zjednoczonych oficjalnie uznała zaburzenia ze spektrum autyzmu za jeden z najpoważniejszych problemów zdrowotnych świata, obok raka, cukrzycy czy AIDS. W świetle stale wzrastających danych epidemiologicznych, w szczególnie trudnej sytuacji stają coraz większe grupy rodziców. Z licznych badań wynika, że doświadczają oni bardzo wysokiego stresu a ich dobrostan jest obniżony.
Cel badań: Celem badań była analiza związku pomiędzy stylami radzenia sobie ze stresem, odczuwanymi emocjami oraz dobrostanem ujmowanym zarówno w ujęciu hedonistycznym (satysfakcja z życia) oraz eudajmonistycznym (dobrostan psychologiczny). Badaniami objęto 184 rodziców dzieci z zaburzeniami ze spektrum autyzmu.
Metoda badań: Do poszukiwania związku pomiędzy zmiennymi wykorzystano analizę ścieżek. W badaniu zastosowano następujące narzędzia badawcze: Kwestionariusz Radzenia Sobie w Sytuacji Stresu (CISS), Skalę Uczuć Pozytywnych i Negatywnych (SUPIN), Skalę Satysfakcji z Życia (SWLS) oraz krótką wersję Skali Dobrostanu Psychologicznego (PWB).
Wyniki: Stwierdzono, że dobrostan psychiczny rodziców dzieci z autyzmem wiąże się pozytywnie ze stosowaniem przez nich stylu radzenia sobie ze stresem skoncentrowanego na zadaniu oraz negatywnie z koncentracją na emocjach. Pozytywne emocje były związane pozytywnie zarówno z satysfakcją z życia, jak i dobrostanem psychicznym. Potwierdzono również negatywny związek między negatywnymi emocjami i satysfakcją z życia.
Wnioski: Zaprezentowane wyniki badań stanowią istotną przesłankę do podejmowania działań na rzecz rodziców dzieci z autyzmem. Odpowiednio dobrane wsparcie może być dla nich podstawą do stosowania bardziej adaptacyjnych sposobów radzenia sobie ze stresem, przekładając się tym samym na pozytywne emocje i dobrostan.
Słowa kluczowe
Pełny tekst:
PDF (English)Bibliografia
Abbeduto, L., Seltzer, M. M., Shattuck, P., Murphy, M. M. (2004). Psychological Well-Being and Coping in Mothers of Youths With Autism, Down Syndrome, or Fragile X Syndrome, American Journal of Mental Retardation, 109(3), 237-254.
American Psychiatric Association (2013) Diagnostic and statistical manual of mental disorders (DSM-5®). American Psychiatric Pub
Barker, E. T., Mailick, M. R., & Smith, L. E. (2014). Chronic parenting stress in mothers of adolescents and adults with autism: Vulnerability and resilience. Comprehensive guide to autism, 207-222. https://doi.org/10.1007/978-1-4614-4788-7_9
Bitsikai, V., Sharpley, C. F., Andronicos, N. M., & Agnew, L. L. (2017). What worries parents of a child with Autism? Evidence from a biomarker for chronic stress. Research in Developmental Disabilities, 62, 209-217. https://doi.org/10.1016/j.ridd.2017.02.003
Bristor, M. (1984). The birth of a handicapped child: A wholistic model for grieving. Family Relations. National Council on Family Relations, 33,25-32. https://doi.org/10.2307/584586
Brown, R. I., MacAdam-Crisp, J., Wang, M., Iarocci, G. (2006). Family Quality of Life When There Is a Child With a Developmental Disability. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 238-245. https://doi.org/10.1111/j.1741-1130.2006.00085.x
Buser, J. K., & Kearney, A. (2017). Stress, adaptive coping, and life satisfaction. Journal of College Counseling, 20(3), 224-236. https://doi.org/10.1002/jocc.12071
Cappe, E., Wolff, M., Bobet, R., Adrien, J-L. (2011). Quality of life: A key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life. An
International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation 20 (8):1279-1294. doi:10.1007/s11136-011-9861-3 34.
Carver, C. (2003). Pleasure as a sign you can attend to something else: Placing positive feelings within a general model of affect. Cognition and emotion, 17(2), 241-261. https://doi.org/10.1080/02699930302294
Cosmides, L., & Tooby, J. (2000). Evolutionary psychology and the emotions. Handbook of emotions, 2(2), 91-115.
Crnic, K., & Ross, E. (2017). Parenting stress and parental efficacy, En Parental stress and early child development: Adaptive and maladaptive outcomes (pp. 263–284). Springer International Publishing. https://doi.org/10.1007/978‐3‐319‐ 55376‐4_11
Czenczek, E., Szeliga, E., Przygoda, Ł. (2012). Jakość życia rodziców dzieci autystycznych. Przegląd Medyczny Uniwersytetu Rzeszowskiego i Narodowego Instytutu Leków w Warszawie, 446-454.
Dabrowska, A, Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research 54 (3):266-280. doi:10.1111/j.1365-2788.2010.01258.x
Dardas, L.A., Ahmad, M.M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress And Health: Journal Of The International Society For The Investigation Of Stress, 31 (1):5-12. doi:10.1002/smi.2513
Diener, E. D., Emmons, R. A., Griffin, S. (1985). The Satisfaction With Life Scale. Journal of Personality Assessment, 49. https://doi.org/10.1207/s15327752jpa4901_13
Diener, E., & Larsen, R. J. (1984). Temporal stability and cross-situational consistency of affective, behavioral, and cognitive responses. Journal of personality and social psychology, 47(4), 871. https://doi.org/10.1037/0022-3514.47.4.871
Diener, E., & Emmons, R. A. (1984). The independence of positive and negative affect. Journal of Personality and Social Psychology, 47, 1105–1117. https://doi.org/10.1037/0022-3514.47.5.1105
Diener, E., Lucas, R., & Scollon, C. N. (2006). Beyond the hedonic treadmill: Revising the adaptation theory of well-being. American Psychologist, 61, 305–314. doi:10.1037/0003-066X.61.4.305
Eid, M., & Diener, E. (2004). Global judgments of subjective well-being: Situational variability and long-term stability. Social indicators research, 65, 245-277. https://doi.org/10.1023/B:SOCI.0000003801.89195.bc
Emmons, R. A., & Diener, E. (1985). Personality correlates of subjective well-being. Personality and Social Psychology Bulletin, 11, 89-97. https://doi.org/10.1177/0146167285111008
Endler, N. S., & Parker, J. (1990). Coping inventory for stressful situations. Multi-Health systems, Toronto
Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of autism and developmental disorders, 44, 3185-3203. https://doi.org/10.1007/s10803-014-2189-4
Folkman S. (1997) Positive psychological states and coping with severe stress. Social Science and Medicine 45(8), 1207-1221. https://doi.org/10.1016/S0277-9536(97)00040-3
Folkman, S., Moskowitz, J. T. (2004). Coping: Pitfalls and promise. Annual Review of Psychology, 55,745-774. https://doi.org/10.1146/annurev.psych.55.090902.141456
Frantz, R., Hansen, S. G., & Machalicek, W. (2018). Interventions to promote well-being in parents of children with autism: A systematic review. Review Journal of Autism and Developmental Disorders, 5, 58-77. https://doi.org/10.1007/s40489-017-0123-3
Fredrickson, B. L. (1998). What good are positive emotions?. Review of general psychology, 2(3), 300-319. https://doi.org/10.1037/1089-2680.2.3.300
Fredrickson, B. L., & Cohn, M. A. (2008). Positive emotions. Handbook of emotions, 3, 777-796.
Goldbeck, L. (2001). Parental coping with the diagnosis of childhood cancer: gender effects, dissimilarity within couples, and quality of life. Psycho‐Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer, 10(4), 325-335 https://doi.org/10.1002/pon.530
Hastings, R. P., Kovshoff, H., Ward, N. J., Degli Espinosa, F., Brown, T.,Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635-644. https://doi.org/10.1007/s10803-005-0007-8
Henry, N., Kimberley, F., Quinn, M. G. (2014). The Factors Predicting Stress, Anxiety and Depression in the Parents of Children with Autism. Journal of Autism & Developmental Disorders, 3185-3203.
Heszen- Niejodek, I. (2007). Teoria stresu psychologicznego i radzenia sobie. W: J. Strelau (red.) Psychologia Podręcznik Akademicki (t. 3, s. 465-492). Gdańsk: Gdańskie Wydawnictwo Psychologiczne.
Heszen, I. (2013). Psychologia stresu. Warszawa: Wydawnictwo Naukowe PWN
Hui, M., Guang, L., Wang, H., Lei, H., Liang, M., Rui, S., Fan, Z. (2018). Social Support as Mediator and Moderator of the Relationship Between Parenting Stress and Life Satisfaction Among the Chinese Parents of Children with ASD. Journal of Autism and Developmental Disorders, 1181-1188.
Hurley, R. S., Losh, M., Parlier, M., Reznick, J. S., & Piven, J. (2007). The broad autism phenotype questionnaire. Journal of autism and developmental disorders, 37, 1679-1690. https://doi.org/10.1007/s10803-006-0299-3
Karst, J. S., Vaughan Van Hecke, A. (2012). Parent and Family Impact of Autism Spectrum Disorders?: A Review and Proposed Model for Intervention Evaluation Parent and Family Impact of Autism Spectrum Disorders?: A Review and Proposed Model for Intervention Evaluation. Clinical Child and Family Psychology Review, (May 2014). https://doi.org/10.1007/s10567-012-0119-6
Keenan, B. M., Newman, L. K., Gray, K. M., Rinehart, N. J. (2016). Parents of children with ASD experience more psychological dis-tress, parenting stress, and attachment-related anxiety. Journal of Autism and Developmental Disorders, 46(9), 2979-2991. https://doi.org/10.1007/s10803-016-2836-z
Kuppens, P., Realo, A., & Diener, E. (2008). The role of positive and negative emotions in life satisfaction judgment across nations. Journal of personality and social psychology, 95(1), 66. https://doi.org/10.1037/0022-3514.95.1.66
Lai, W. W., Goh, T. J., Oei, T. P., & Sung, M. (2015). Coping and well-being in parents of children with autism spectrum disorders (ASD). Journal of autism and developmental disorders, 45, 2582-2593. https://doi.org/10.1007/s10803-015-2430-9
Lazarus, R.S., Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer
Liberska, H., & Deja, M. (2021). Satisfaction with life, emotions, and identity processes in Polish first-time mothers and fathers and their child's age. International Journal of Environmental Research and Public Health, 18(2), 799. https://doi.org/10.3390/ijerph18020799
Luong, J., Yoder, M. K., & Canham, D. (2009). Southeast asian parents raising a child with Autism: A qualitative investigation of coping styles. The Journal of School Nursing, 25(3), 222-229. https://doi.org/10.1177/1059840509334365
Maenner MJ, Warren Z, Williams AR, et al. Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020. MMWR Surveill Summ 2023;72(No. SS-2):1-14. DOI: http://dx.doi.org/10.15585/mmwr.ss7202a1
Mayordomo, T., Viguer, P., Sales, A., Satorres, E., & Meléndez, J. C. (2021). Resilience and coping as predictors of well-being in adults. Mental Health and Psychopathology (pp. 265-277). Routledge. https://doi.org/10.4324/9781003243601-15
McStay, R. L., Trembath, D., Dissanayake, C. (2014). Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model. Journal of Autism and Developmental Disorders, 44(12), 3101-3118. https://doi.org/10.1007/s10803-014-2178-7
Nikmat, A. W., Ahmad, M., Oon, N. L., & Razali, S. (2008). Stress and psychological wellbeing among parents of children with autism spectrum disorder. ASEAN Journal of Psychiatry, 9(2), 65-72.
Pastor- Ceruzuela, G., Fernandez, I., Tarraga-Minguez, R. (2015). Parental Stress and ASD?: Relationship With Autism Symptom Severity , IQ , and Resilience. Focus on Autism and Other Developmental Disabilities, (December).
Pavot, W., & Diener, E. (1993). Review of the satisfaction with life scale. Psychological assessment, 5(2), 164. https://doi.org/10.1037/1040-3590.5.2.164
Pisula, E. (2006). Czy profesjonaliści mogą pomóc rodzicom? W: A. Twardowski (red.), Wspomaganie dzieci z genetycznie uwarunkowanymi wadami rozwoju i ich rodzin, Poznań: Polskie Towarzystwo Pedagogiczne
Pisula, E. (2012). Rodzice dzieci z autyzmem. Warszawa: Wydawnictwo Naukowe PWN SA.
Pozo, P., Sarriá, E., Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research, 58(5), 442-458. https://doi.org/10.1111/jir.12042
Rozporządzenie Ministra Edukacji i Nauki z dnia 8 grudnia 2023 r. w sprawie sposobu podziału części oświatowej subwencji ogólnej dla jednostek samorządu terytorialnego w roku 2024 (Dz.U. 2023 poz. 2755)
Ryff, C. D. (1989). Happiness is Everything, or is it? Journal of personality and social psychology, 57(6), 1069-1081.
Ryff, C. D. (2013). Psychological well-being revisited: Advances in the science and practice of eudaimonia. Psychotherapy and psychosomatics, 83(1), 10-28.
Sagone, E., De Caroli, M. E., Falanga, R., & Indiana, M. L. (2019). Differences in resilience, coping, and well-being between parents of short-term hospitalized children and parents of healthy children. Life Span and Disability, 22, 303-329.
Schmutte, P. S., & Ryff, C. D. (1997). Personality and well-being: reexamining methods and meanings. Journal of personality and social psychology, 73(3), 549. https://doi.org/10.1037/0022-3514.73.3.549
Seltzer, M. M., Greenberg, J. S., Hong, J., Smith, L. E., Almeida, D. M., Coe, C., Stawski, R. S. (2010). Maternal Cortisol Levels and Behavior Problems in Adolescents and Adults with ASD. Autism Developmental Disorder, 40(4), 457-469. https://doi.org/10.1007/s10803-009-0887-0
Siegel, B. (1997). Coping with the diagnosis of autism. W: F. Volkmar, D.Cohen (red.), Handbook of Autism and Developmental Disorders, New York: Wiley
Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of autism and developmental disorders, 38, 876-889. https://doi.org/10.1007/s10803-007-0461-6
Tavakolizadeh, J., Mohammadi, Z., & Safarzade, S. (2017). Effect of stress inoculation training on coping styles and psychological well-being status of mothers with mental retard children. Journal of Research and Health, 7(5), 1055-1064.
Tomczak, K. (2009). Style radzenia sobie w sytuacji stresowej , przekonanie o własnej skuteczności , nadzieja na sukces u studentów rozpoczynających i kończących studia. Psychoterapia, 2(149), 67-79.
Tran, V. A., & Chantagul, N. (2018). Influence of coping style on life satisfaction among Vietnamese undergraduates of psychology, mediated by stress, anxiety, and depression. Human Sciences, 10(2), 174-174.
Vernhet, C., Dellapiazza, F., Blanc, N., Cousson-Gélie, F., Miot, S., Roeyers, H., &Baghdadli, A. (2019). Coping strategies of parents of children with autism spectrum disorder: A systematic review. European child & adolescent psychiatry, 28, 747-758. https://doi.org/10.1007/s00787-018-1183-3
Vollmann, M., Antoniw, K., Hartung, F., Renner, B. (2011). Social Support as Mediator of the Stress Buffering Effect of Optimism?: The Importance of Differentiating the Recipients' and Providers Perspective. European Journal of Personality, 154 (December 2010), 146-154.
Wang J, Hu Y, Wang Y, Qin X, Xia W, Sun C, Wu L, Wang J (2013). Parenting stress in Chinese mothers of children with autism spectrum disorders. Social Psychiatry and Psychiatric Epidemiology 48 (4):575-582. doi:10.1007/s00127-012-0569-7 33. https://doi.org/10.1007/s00127-012-0569-7
Wang, P., Michaels, C. A., Day, M. S. (2011). Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities. Journal of Autism & Developmental Disorders, 783-795. https://doi.org/10.1007/s10803-010-1099-3
Waterman, A. S. (1993). Two Conceptions of Happiness?: Contrasts of Personal Expressiveness Two Conceptions of Happiness?: Contrasts of Personal Expressiveness ( Eudaimonia ) and Hedonic Enjoyment. Journal of personality and social psychology, 64(June), 678-691. https://doi.org/10.1037/0022-3514.64.4.678
Waterman, A. S., Schwartz, S. J., Conti, R. (2008). The implications of two conceptions of happiness (hedonic enjoyment and eudaimonia) for the understanding of intrinsic motivation. Journal of Happiness Studies. https://doi.org/10.1007/s10902-006-9020-7
Wei, W., Tze, L., Goh, J., Oei, T. P. S., Sung, M. (2015). Coping and Well-Being in Parents of Children with Autism Spectrum Disorders ( ASD ). Journal of Autism and Developmental Disorders, 2582-2593.
Whitehouse, A. J., Coon, H., Miller, J., Salisbury, B., & Bishop, D. V. (2010). Narrowing the broader autism phenotype: a study using the Communication Checklist-Adult Version (CC-A). Autism, 14(6), 559-574. https://doi.org/10.1177/1362361310382107
Zaidman, A., Pat, Z., Peter, M., Eric, S., Isabel, D., Tracy, M. S., Elsabaggh, M. (2018). Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder?: Relations to Parent and Child Outcomes. Journal of Autism and Developmental Disorders, 2064-2076. https://doi.org/10.1007/s10803-018-3467-3
Zaidman-Zait, A., Mirenda, P., Duku, E., Smith, I. M., Vaillancourt, T., Szatmari, P., Thompson, A. (2016). Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism, 21, 155-166. https://doi.org/10.1177/1362361316633033
Zheng, Y., Plomin, R., & von Stuum, S. (2016). Heritability of intraindividual mean and variability of positive and negative affect: Genetic analysis of daily affect ratings over a month. Psychological Science, 27, 1611-1619. https://doi.org/10.1177/0956797616669994
DOI: http://dx.doi.org/10.17951/lrp.2024.43.3.47-68
Data publikacji: 2024-12-31 15:39:57
Data złożenia artykułu: 2024-06-19 09:43:30
Statystyki
Wskaźniki
Prawa autorskie (c) 2024 Edyta Bałakier, Karol Konaszewski
Powyższa praca jest udostępniana na lcencji Creative Commons Attribution 4.0 International License.